Searchable abstracts of presentations at key conferences in endocrinology
ea0056ern1.3 | Endo-ERN: concrete examples of added value for patient care | ECE2018
ESE Endo-ERN symposium: Patient and family perspectives, Manuela Brösamle, Endo-ERN ePAG
Introduction: The presentation is based on experiences and opinions of CAH patients represented by German AGS parents and patient initiatives.Meaning of patient and family perspectives: The aim is to provide an overview about wishes and expectations of German CAH patients. A special view will be given to quality of live and influencing factors of treatment.Examples of family perspectives: The importance and meaning of patient and f...
Endocrine Abstracts
ISSN 1470-3947 (print) | ISSN 1479-6848 (online)
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